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Latest comments - All (35)
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December 3, 2018 Spoke with Pam and she sounds in good spirits. She is setting little goals for herself as she follows her rehabilitation journey. She's quite a lady! You Go Pam!
7 days ago.
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Friends Of Pam
By Clickity Click
November 9, 2018

Such Good News From Pam!

THankyou all. returning from a stroke
By Pam J
November 9, 2018

This thank you has been a long time coming, but it comes straight from my heart.

As most of you know I had a huge Brain Bleed/Stroke on Friday the 7th of September this year.

On that evening my world changed beyond description. I was one of the lucky ones as Jay, my husband, came into my work room and knew the signs of a stroke. (I will come back to this later.) He called 911 and an ambulance came fast. It's a ride I do not remember! But it would be another 5 weeks before I came home again.

It took me to our regional hospital who ran a fast CAT scan and said that I had a huge brain bleed, but they could not properly help me and I needed to be taken to the OU (Oklahoma University) Medical Centre in OKC as they had STROKE specialty help. More sirens and lights ride and the Centre started work on me fast. CAT scan and up to the operating rooms. This meant scalp incisions (lost all my long red hair! IT Ws SHAVED OFF) that beat any Halloween make-up! I also had a hole drilled in my skull to release the pressure of the bleeding caused be an AVM.

en.wikipedia.org/wiki/Arteriovenous_malformation Jay was with me all he could be. I was unconscious and very unresponsive. He had to witness me put on a ventilator and given transfusions and being cut up.

I was taken to ICU and was there two weeks. I finally regained consciousness. The Brain Surgeon was confident that I would make a full recovery after many tests because of Jay's rapid action.

I was finally taken off the ventilator and the other tubes were removed in the following days, including a feeding tube and I was transferred to a "step down" room for the next week.

It was decided I was to be then transferred to a Rehab facility. I was there for two weeks and was given intensive PT and weened off puréed food and thickened liquids after being given many swallow tests.

I was finally allowed to come home on the 11th of October.

All this time Jay was not only driving to OKC daily but coping with our three dogs and many cats and the intense stress of the situation that was unfolding daily.

I have a box full of cards here and am humbled beyond words. I never realised just how many lives I had touched over the years.

Thank you ALL! A special thanks to Peggy C. and my close pals Marty and Chris - they acted as relays for information and helped Jay so very much.

My Dogs and Cats are my medicine now.

However, the Brain Surgeon has a treatment plan for me. It is going to be targeted radiation to slowly destroy the AVM. This treatment will start early next year. It should mean that the stroke will not happen again. This has been a life changing happening for me and Jay.
Time is needed to heal.

I now need to THANK ALL who sent cards and prayers and love and care. You ALL lifted me up and were a huge part of a support system. Those who spoke to me over the phone in my room know exactly how fightened and scared I was. Thank you ALL

for holding me in your hearts.

I was so very lucky and I still have some healing to do. I have some sight and focus problems (not good for a photographer

tactustherapy.com/what-is-left-neglect

but I will, given time and patience, HEAL and RECOVER. I know you will all understand that as much as I want to come back, I just cannot do it instantly. I use a walker frame for now to steady me as well.

PLEASE PASS THIS ON TO AT LEAST ONE PERSON A WEEK. YOU CAN SAVE LIVES AND DAMAGED QUALITY OF LIFE WITH THIS. Use FAST to remember the warning signs of a stroke. The letter F stands for face FACE: Ask the person to smile. Does one side of the face droop?
A stands for arms ARMS: Ask the person to raise both arms. Does one arm drift downward?
S stands for speech SPEECH: Ask the person to repeat a simple phrase. Is their speech slurred or strange?
T stands for time TIME: If you observe any of these signs, call 9-1-1 immediately. Call 9-1-1 immediately if you observe any of these symptoms. Note the time of the first symptom. This information is important and can affect treatment decisions. Recognizing Stroke Act FAST www.stroke.org/understand-stroke/recognizing-stroke/act-fast

October 25, 2018
APPOINTMENT With DoctoR CHEEMA AND PLAN FOR TREATMENT

Just back - 25 October 2018

Treatment Options:

No Treatment -surgery Not an Option

1) Surgery- Remove the AVM. (the bunch of blood vessels)

Not Recommended because adjacent brain tissue may be damaged.
Also, the nature of the AVM is not a good candidate for surgery, because the arteries are connected to working parts of the brain.

-which he saw this at the time . when he operated to relieve the pressure on my brain at the time of the bleed

2) Blocking the AVM- Fill the AVM with "glue"..

Not recommended because the arteries are connected to working parts of the brain.

3) Radiation- Target the AVM with radiation

Recommended- Requires an MRI in January and treatment in late February.
This is an Outpatient procedure.
May cause swelling, which will require other treatment at the time and would be done on site at OU Medical centre

So now we wait. I like the man and trust him totally.

I now have to work on my left side "cut off sight; and small , moving objects and focus"

This changed my life and I am still in shock and need this time to heal and recover. Small things send me off track right now as you will understand, I am sure.

Pam
4 weeks ago. Edited 4 weeks ago.
Clickity Click
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Pam sent this to Peggy and I yesterday. 25 October 2018

APPOINTMENT With DoctoR CHEEMA AND PLAN FOR TREATMENT

Just back - 25 October 2018

Treatment Options:

No Treatment -surgery Not an Option

1) Surgery- Remove the AVM. (the bunch of blood vessels)

Not Recommended because adjacent brain tissue may be damaged.
Also, the nature of the AVM is not a good candidate for surgery, because the arteries are connected to working parts of the brain.

-which he saw this at the time . when he operated to relieve the pressure on my brain at the time of the bleed

2) Blocking the AVM- Fill the AVM with "glue"..

Not recommended because the arteries are connected to working parts of the brain.

3) Radiation- Target the AVM with radiation

Recommended- Requires an MRI in January and treatment in late February.
This is an Outpatient procedure.
May cause swelling, which will require other treatment at the time and would be done on site at OU Medical centre

So now we wait. I like the man and trust him totally.

I now have to work on my left side "cut off sight; and small , moving objects and focus"

This changed my life and I am still in shock and need this time to heal and recover. Small things send me off track right now as you will understand, I am sure. Pam
6 weeks ago. Edited 6 weeks ago.
Clickity Click
Clickity Click
Wonderful news, PAM IS HOME!! She is facing rehabilitation with determination.

This information is also in my article of Friends of Pam.
8 weeks ago. Edited 8 weeks ago.
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Clickity Click
Hi! Just got this from Jay:

Pam is in the rehab facility, aka skilled nursing facility.

She will most likely be there for the next two weeks. Depending on her progress and what the insurance is willing to do, she may have another stay at an advanced rehab, aka inpatient rehab facility. Skilled nursing is low intensity 2 hours or so of PT per day. Inpatient is more intense with 4 or more hours of PT per day.

The facility is clean and bright with windows that look out on the front lawn. Everyone I met on the staff was friendly and supportive.

The address is:
Pam Johnson
Medical Park West, Room 605
3110 Healthplex Parkway
Norman, OK 73072

Pam is enthusiastic and working with the staff. Her motivation is that she wants to come home.

They are working on bathroom skills, standing, and using a walker.

She is back to talking in paragraphs when 3 or 4 words would answer most questions.

I dropped off her tablet, but she was having some problems. She knows what she wants to do, but she needs to relearn how to drive it. You may or may not get a note from her in the near future.

Chris & Peggy
2 months ago. Edited 2 months ago.