renovatio06 Published on July 31, 2007
by renovatio06

renovatio06's blog

Browse posts
Latest Addition...
Posted on August 4, 2007
7 comments (latest 2 years ago)
A Day in the City
Posted on August 3rd, 2007
7 comments (latest 2 years ago)
Havana
Posted on August 2nd, 2007
32 comments (latest 2 years ago)
Inspiration
Posted on August 1st, 2007
5 comments (latest 2 years ago)
Pain and Progress
12 comments (latest 2 years ago)
Self-Censorship
Posted on July 22, 2007
6 comments (latest 2 years ago)
Dating sucks
Posted on July 20, 2007
15 comments (latest 2 years ago)
Wanna see the future?
Posted on July 18, 2007
10 comments (latest 2 years ago)
Lovely Day
Posted on July 14, 2007
3 comments (latest 2 years ago)

More information

This post is public
All rights reserved
  1. Read 213 times

Pain and Progress

Tuesday July 31, 2007 at 09:20PM

I am presently undergoing a series of medical tests again to make sure of or rule out intolerances to certain nutritional substances. Particularly, I'm being tested on lactulosis-, fructose- and lactose-intolerance, starting with lactulosis today.

In order for the test to produce some valuable results you have to show up fasting, meaning having not eaten after 6pm the day before until the test and after - that makes 18 hours without food or drink, only decarbonized water is allowed. The test was scheduled for 9am this morning.

To my own surprise I showed up there in time, that is 9am sharp, not one minute earlier or later... ;-) I was then ushered to the lab, introduced to another gentleman and his family, who had already started the procedure and then got instructed on how the test was to be taken. The doctor was a very nice, helpful and compassionate lady in her late fourties, I'd say. After having detailed the test procedure, she prophylactically showed me the restrooms, quick to explain that the liquid I was about to drink generally produces and enhances the symptoms I've been suffering from for most of my life and which brought me here in the first place. It turned out to be a very much needed advice...

So, 9.10 am I'm having about 200 ml (a drinking glass) of lactulosis, which is a bi-saccharide (sugar) contained in many foods. I am then instructed to exhale into a syringe for about 10 seconds, close it with the according plug and repeat that routine every 10 minutes for a total time of 2 hours. Fair enough and no big deal apart from being a little drousy after having exhaled hard, not having had any food nor drink this morning and showing up after a lousy night with maybe 4 hours of sleep in total.

The gentleman I had been introduced to starts a conversation, which I'm initially very grateful for, as it has me forget my own lousy condition this morning. Also, his wife and particularly his daughter seem to be very nice persons and I'm beginning to think "Oh, this is going to be a walk in the park, and afterwards you reward yourself with a big, "fat" Thai lunch at a nearby restaurant.". That was the plan...

Five minutes into the first testing cycle, I sense an unpleasant sensation in the abdomen and lower intestinal parts. I can't hang on to that thought for too long and hurry to excuse myself, then practically running to the bathroom I was shown before. Did the lady doctor mention getting the runs...?

However, I can't take too long using that bathroom, either, as I have to "whistle" into the syringe again before ten minutes have elapsed. What can I say? The morning continued in much a similar fashion, with cramps and abdominal pain accompanying the four or five times of my attempt to set a new sprint world record for the nearest "utility area"...

If I had needed any proof of how much better I have been feeling eversince addressing my severe health issues about two and a half years ago, it would have to be today's experiences. Apart from the embarrassment of having to "go" every 10-20 minutes, I literally felt like shit. And then the pain. Then migrane setting in. Loss of appetite. Sweating. Shall I continue or are you already throwing up? I can't get myself to imagining, how in the world I have managed to go to WORK in such a condition, let alone just endure this for about 25 years NON-STOP!!!! If you think, I'm being overly dramatic, go ask my ex-wife about our time together...

And then, being in the company of this very nice Bahraini family, it made it all the more apparent to me how limiting my condition has been all along: I mean, if you have to monitor your bowels permanently, how can you possibly enjoy just about ANYTHING? No surprise, I'm being totally burnt out from enduring chronic disease...

Speaking of that: I'm afraid I'm about to face complete bankruptcy given my condition. But that would be another post.

In closing, do I need to mention, I felt literally sick the entire day? Having endured the symptoms from this "drink" sent me to bed right away. I slept for two hours and then drove me to get up again to get some email checked upon and replied to.

Next week, the testing (make that "torture"...) continues for another two sessions...

12 Comments / add your comment?

... says:
Gawwwwwwwwwddd...terrible!! ohhh i sooo feel for you. I do hope so much that these tests produce some results that will help you. I am sure you have to be exhausted now. At least you see the progress.......i was going to make a joke...maybe to get you to laugh...but I'll save it. ;)) I do feel bad for you...honestly. I am sooo happy that you are so fucking honest!!! I LOVE IT!!
Posted 2 years ago. ( permalink )
renovatio06 replies:
Thanks Sara! See my "nothing to lose" point-of-view? ;-) Thanks for being compassionate and encouraging me!
Posted 2 years ago. ( permalink )
jurmerga says:
ufff, Werner, I am SO very sorry ... I hope the doc really knows what she is doing and you are going to pass those torturing tests for the sake of finding a clue. It will CHANGE, it WILL dear! HUG
Posted 2 years ago. ( permalink )
renovatio06 replies:
:-D Thank you, Jura! :-) Yes, I would hope the "torture" is going to produce some valuable results and more importantly, a promising therapy in the aftermath. As for the doctor: Oh yes, I have lots of confidence in her, she really seems to know her field! Thank you!
Posted 2 years ago. ( permalink )
renovatio06 replies:
Thank you, Sherry! Very much appreciated and the angels send some greetings back to you and would like me to let you know, they'll only spend as much time as necessary :-)) Thanks!
This is a reply to Sherry ~ Rebujito's comment.
Posted 2 years ago. ( permalink )
Julian says:
Not sure where to start here. or even how much to say. I could start by saying "been there done that!" Almost verbatim! Wow! Then I remember to myself how I hated everyone telling me about what happened to them and what they did to get over it, but what they had was only an upset stomach! I remember collapsing in pain in front of my daughter and how freaked out she was, she was so young she even thought she had done something to cause it! She was rolled up in the corner and I couldn't get up to go to her! Damn, I'm crying thinking of it, I was in so much pain one time they had me in for emergency surgery so fast I didn't know what hit me!

So, anyway, let me try to be brief... I had chronic intestinal and bowel pain for about ten years, towards the end going on short term and then long term disability. That was one of the first good things that could have happened, as I was able to concentrate on taking care of myself, getting out on my bike, reminding myself what used to make me feel good. It wasn't a cure, but it did make me feel better while I was going through a bank of tests that verged so close to torture that one time the Doctor said, "we just crossed the line from test to torture, so we're done"! I said, "Good, cause I was about to ask you to show me your SS badge"... I know - not funny! The worst part was not knowing, but I was assured that the further along the testing goes, the less likely it is anything serious! The pain didn't get any less serious though!

Looking back on everything, the best thing I did was probably going vegetarian! As my Doctor at the time said, it's like sending your entire gastrointestinal/digestive system on a holiday, it's a lot less work! The strange part was my twin brother went through the same thing and he too went vegetarian! I still have pain, but nothing like before, life is much better... and I only miss meat when it's Turkey Time!

So, I can truly empathize with you, and I can also say there is light at the end of the tunnel... and no it's not an endosope! LOL! I wish you well my friend, try to set your worries aside, easier said then done I know, but it does go a long way to helping you get through! "iechyd da" as the Welsh say! Good Health!
Posted 2 years ago. ( permalink )
renovatio06 replies:
Wow, Julian... as good as it feels not to be alone in that, as sorry I am to hear you've been suffering as well - to quite some extent so, too... Yeah, I know what you're talking about: Unsolicited advice from non-compassionate parties, I hear you! The episode with collapsing in front of your daughter - man..., all that emotional pain and frenzy in addition to the physical pain... shit!

"Love" the SS comment, though... te-he...

How frustrating, huh, when you're in such amounts of pain and all the testing doesn't explain for it... a relief on one hand, a frustration on the other, because it has you thinking "Why can't I be good, then?" At least to me it feels that way at times.

I'm about to file for a rehabilitation stay myself now, in order to get a time out and fully concentrate on getting better.

Cracking up here about the endoscope! Good one! LOL Thank you so much for your good wishes, I appreciate them! And once I'm better and have been able to put some money for travel on the side, we should meet up one day :-)
Thanks, Julian!
Posted 2 years ago. ( permalink )
Julian replies:
I'm glad I "cracked you up"! Meeting up one day would be very cool - I'd like that!

Maybe an Ipernity Meet... maybe in San Francisco... ya listening Sherry?
Posted 2 years ago. ( permalink )
Keespro says:
Werner, I feel for you! A person very close to me had an endoscopy once, and barely survived it (complications). She won’t have another one, and rather die first. The same applies to me, but I’d rather die before seeing any doctor... (Last time I saw one was after I had tried to cure a shattered elbow with ice for four days.)

I can only hope for you that –as routine sets in– the follow-up treatments will be less irksome. And that it will all be for your good, of course!
Posted 2 years ago. ( permalink )
renovatio06 replies:
Thanks, Kees, for your compassion - and sharing your stories about endoscopies and shattered elbows! I can't say that I trust any physician, but in certain situations - like fractured bones and such - I kind of automatically call upon their "services" to fix, what's broken ;-)
Posted 2 years ago. ( permalink )
jurmerga says:
Ditto, Julian! And would witness that life for my entire "network of tubes" and for me and others besides me and in general became easier after me went vegetarian. I did it about 20 years ago and also because of some blocks, plugs and another troubles in the "network of tubes". Sure, those symptoms and done tests were not at the same level as yours, Werner. And also I was "reading" at that time and "re-reading" later those troubles as a sign of something terrible - at least a kind of damnation at the beginning and concluded finally that I "got" them like sandpaper which I needed to smooth my ragged edges down. It took time on "re-reading" until I started to look at those troubles as my challenges from which I can learn a lot. But as someone once remarked that those who never "re-read" anything are obliged to "read" the same everywhere ;-) And I know, dear, it is pretty HARD to get through it though and appreciate very much that you do not hide your suffering ..... Viva PATIENCE! Are we stronger than we believe? Is the kindness we count upon hidden in everyone? SURE! sending LOVE :-)
Posted 2 years ago. ( permalink )
renovatio06 replies:
Thanks, Jura, Lithuanian reiki-queen! ;-) Seriously, I appreciate your words and sharing your own experiences in order to enlighten me and assist with some additional guidance. Yes, I'm beginning to understand that all of this is a wakeup call in some way, although a quite painful one, I must say...
Had another test today for mucoviscidosis - luckinly, I'm not suffering from that, would have been nasty... I think I might write about that tomorrow or so.
Posted 2 years ago. ( permalink )

Add your comment

Reply to this comment

Edit your comment

Please sign in to post a comment Sign in now?


rss Latest comments – Subscribe to the feed of comments related to this post.

 

Català | Čeština | 中文 | Deutsch | English | Español | Esperanto | Ελληνικά | Français | Galego | Italiano | Nederlands | Português | Svenska ny | More...